No chemo today

My numbers were a mixed bag with more being bad than good.  Two of my liver numbers got better, but my Bilirubin got dramatically worse.  The number went from 1.6 to 3.3 in 2 weeks-I have never had that type of jump.   What that means is that my liver is really struggling right now.  Throwing more chemo at it would probably not be productive.   Also my white blood cells are down.  I have a had a tough Cold over the past couple of weeks and that may be driving those numbers down.  Again having chemo and driving those numbers down would probably get me feeling a whole lot worse.  Basically Dr. Duane decided to give me another 2 weeks off so everything could get healed up.  Nov 10th will be my next round.  We then will wait 3 weeks before the next round.  WE will do scans right before that round to see where everything is at.  The plan then is to switch to a pill form of 5FU and then continue to do infusions when my body can handle it.  When we make that change, we will go to a 3 week schedule.  I reviewed everything with my oncologist at Mayo and he agreed with everything we are doing.  He felt as of Sept. 20th that my disease was stable.  However since that time I have had no Oxaliplatin and have missed several weeks of chemo.  The big picture is my liver is still very damaged from the radiation I had and can’t handle much right now.  My Mayo Oncologist said I really need a 4 month break from all treatments to help my liver, blood work and body recover.  The problem with that is my disease has always taken advantage of that situation.  As of today I feel o.k.  I continue to work like normal.   I am slowly getting over this Cold.  I have outbreaks of Hives every few days and they don’t know why.  They started Oct. 9th and are not sure what brings them on.  I have an appointment to see a dermatologist next week.  I have some pains around my low back and my stomach area that come an go.  Today Dr. Duane felt around and couldn’t find anything else but the enlarged spleen that could be causing it.  Besides all that, life goes on and I generally feel pretty well.

On a sad note, my friend Charlie from church passed away on Monday.  He was 55 years old.  I saw him this past Sunday morning at church.  It was a weird quirk that I was even at church.  I got up early at Karen’s parents place and just decided to come back and catch the 11 a.m. service.  When I saw Charlie he looked extremely sick.  He just hugged me and told me how weak he was.  He admitted to me several months ago that he was getting weaker and weaker-he tried to keep it a secret.  Charlie was diagnosed with stage 4 Colon Cancer in May of 2007.    He had met Karen and had hung out with my boys several times at church.  He was the first person I ever met at Hosanna.  I met him the first night I went to Pray for the Cure.  He was a source of strength, love and inspiration.  I know several of you knew him as well.

 

Chris

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6 Comments

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6 responses to “No chemo today

  1. Lisa Coleman

    Hang in there – hoping all your numbers rebound soon. I am very sorry to hear about your friend Charlie.

  2. Aunt Val & Eli

    Hi Chris,
    Thanks for the update.
    It was in September that Eli broke out in hives and itched really bad every night for about two weeks. They would go away during the day. He then got a horrible cold and the hives went away. The cold lasted for about three weeks. With that, he started to cough as the sun went down and it went on all night. He now has recovered from the cold. I don’t know it the hives were a part of a virus that started the cold or what, I did hear of others in the area that had hives and itching before the cold. I hope yours goes away very soon.
    I’m sorry to hear about your friend Charlie.
    You are always in our thoughts and prayers, along with Karen, Brenden and Jaxson.
    God Loves You and So Do We.

  3. lo

    hi, chris! i’m sorry for the loss of your friend, charlie. i continue to admire your energy and upbeat attitude at work. still prayin’ for platelets and positive numbers all around!

  4. Lois

    So sorry to hear about your friend.
    We wondered what was happening since it has been a little while between blogs. We pray your numbers will rebound soon. Your strength is an inspiration to all of us. Hugs to you and Karen who also has to be a pillar of strength and love. Hang in there both of you.
    We love you.

  5. Patty

    Sorry to hear it was a no go for chemo and about your friend Charlie.
    “Chris Baty” your an amazing man and an inspiration to all of us. Keep up the battle!! Hugs to all.

  6. Cheryl Stainer

    Hi Chris,

    So sorry to hear of the loss of your friend. He is fully healed now! Praise God. Yet it is so discouraging and difficult for those of us left behind. I have been studying the book of Isaiah, God has been reminding me that He is in control of all things. He will not make us go through pain and suffering one moment longer than it is necessary. It is all for His glory.

    Continuing to pray for you, Karen, and the boys,

    Cheryl Stainer

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