I wish I could meet with everyone individually to explain everything, but that just isn’t possible. We reviewed the scans from Tuesday. The cancer in the liver has grown. The cancer in the lungs is starting to grow out of control. Previously I had 3-4 spots in my lungs, now the term they use is, “innumerable”. I will continue to try and receive treatment, but a lot of that is based on blood counts. My platelets actually improved to 83-the highest they have been since July(?). My doctor is looking into Clinical Trials at Mayo and other hospitals, but I may not be eligible as my blood counts still may not be good enough. Drug companies want the healthiest-sickest patients that they can find so it gives their drug the best chance at getting FDA approved.
Long story short, the doctor said that I need to make sure I have everything in order(my Will, my Health-Care Directive, etc..), in case things continue down this path. I think the biggest point of concern is how rapidly things progressed within the lungs. I know very scary/yucky stuff. I will continue to fight as long as my body is willing. I continue to pray for God’s miraculous healing as well . I personally know of several people who have been healed in that way. I still have many faithful pray warriors who are still holding me up praying honestly and fervently for my healing. I cannot thank you all enough for all the prayers and everything that you do for my family. I ask that if I don’t get to live out a full life that all of you will take care of Karen, Brenden and Jaxson for me. Also take care of each other. Pray for each other. Heal each other. Care for each other, don’t hurt each other. Value life. Don’t get mad at the little things-they really, really don’t matter. Most of all-Believe in Jesus and meet me in Heaven! If I get there before all of you I will have already toured the place and will know all the cool hangout spots.
The rest of the appointment:
Hernia: They can’t do surgery on it as the doctor doesn’t believe I can heal from it The doc is looking into other ways to deal with this. I have no idea what they will come up with.
My Cold: It has almost disappeared.
My Pain: This is also lessened a bit.
My weight: The radiology report noted what ave known for the past 2 months. I am retaining water-or was. I got set up for an immediate appointment to get the fluids drained out of my abdominal cavity. The abdominal wall hasn’t been working right and neither has the Liver. When that happens, you will retain fluid and get distended. So my treat for the day was watching them drain 11.5 lbs of water weight out of me . I feel a lot better already. I now am back to a weight of 157 lbs. That water weight will slowly gather again and at some point I may have it drained off again.
At this point Karen and I continue to do the best we can. I am not sure how we will continue to communicate to the kids. They both know that I am very sick.
If things don’t go as well as I pray they do, Karen, my brother Dave, my parents, Karen’s parents, Pastor Pat and Pat Groeper will be the team I will be leaving in charge if I move into the Hospice phase. God has blessed and surrounded me with an amazing amount of people.
Again a very difficult email to write… I desperately wanted to share good news with you.
I just need to take a minute and tell you how great my boss is. His name is Paul Lilienthal. Through this all he has kept me employed. He gives very blunt but sage advice for everything I have gone through. He has some personal experience with this disease. I don’t always see eye to eye on decisions he makes and do not understand all of his motivations but I at the very least need to lift him up to you as he continues to keep me employed through this all.
There are many, many more I need to lift up to you and will as everything evolves.
For now…life goes on and I am thankful for every day. I will continue to work and do chemo when able.